tag:blogger.com,1999:blog-2848916293298934342.post2048461336011928620..comments2023-10-26T07:33:46.550-04:00Comments on 66 roses: Where do I even startErin Moorehttp://www.blogger.com/profile/08027766394549526193noreply@blogger.comBlogger1125tag:blogger.com,1999:blog-2848916293298934342.post-82420505080865090642010-08-31T19:16:30.416-04:002010-08-31T19:16:30.416-04:00Hi, Erin! I saw your comment on the CFF facebook ...Hi, Erin! I saw your comment on the CFF facebook site and came to read your blog. I also have a son with CF. He'll be 21 in November and we've also been through some out of the ordinary things. Nothing like what your sweet baby is going through, though. So sorry to read about all this. I would just recommend one thing as a mom who has spent a LOT of time with her kid in the hospital. If he's having trouble breathing and getting blue, I would opt for staying in the hospital where you are surrounded by people who would know what to do if things got drastically worse very quickly. We've almost lost our son a few times and in 2001, the docs didn't think he'd last another year, but here we are 9 years later! We have a different "normal" than most families, he's been on IV meds at home for the past 9 years and he's been in the hospital a LOT! But he's an amazing young man and it's because of the things he's gone through.<br /><br />I never could have gone through half of what we've faced if I didn't have a firm faith in God, knowing that He loves this boy even more than I do and He has His hand on him and knows the number of his days. We appreciate the gift of each and every day and never take anything for granted. I will be praying for your family and for the doctors who will be treating your son. <br /><br />If you ever need a shoulder or an ear, please don't hesitate to email me at Junes_Chocolate@yahoo.comJourno June aka MamaBearhttps://www.blogger.com/profile/04147813827912805263noreply@blogger.com