tag:blogger.com,1999:blog-2848916293298934342.post2456989179836985618..comments2023-10-26T07:33:46.550-04:00Comments on 66 roses: Finding BalanceErin Moorehttp://www.blogger.com/profile/08027766394549526193noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-2848916293298934342.post-72376461847965683652012-12-22T10:39:29.699-05:002012-12-22T10:39:29.699-05:00p.s. My husband goes through about 2 litres of 10%...p.s. My husband goes through about 2 litres of 10% half and half every other day. It does in everything from tea, to cereal, mashed potatoes, and so forth.Adenahttps://www.blogger.com/profile/08867344917851453119noreply@blogger.comtag:blogger.com,1999:blog-2848916293298934342.post-7413175723772247242012-12-22T10:36:26.793-05:002012-12-22T10:36:26.793-05:00I wish I had a suggestion (other than perhaps goin...I wish I had a suggestion (other than perhaps going back to see your CF team). I just wanted to let you know that this post really resonates with myself, and my husband. My husband has CF, and his entire childhood was a power struggle over food. He had a lot of stomach pain, but didn't know how to express it, and truly, didn't experience hunger, or enjoy the experience of eating. He has done well with appetite stimulants and exercise (as a natural stimulant), but eating is filled with a lot of hard memories from his childhood of being forced to eat despite the discomfort. It is a challenge in our own relationship, because I won't force him to eat, but it is painful to watch him not eat. Of course, this is different than a parent-child relationship.<br /><br />It must be really challenging to balance your son's needs with your other children. One thought is a reinforcement system that all your children can participate in, stickers for complete meals, and so forth, in which a certain number of stickers can be traded in for something special. (For some children, a sticker is enough of a treat)! I'm not a specialist though, I wish I had more suggestions.<br /><br />Has the team looked at your son's motility? In adulthood, this was discovered to be the source of my husband's eating discomfort. He also has a lot of problems with acid. These might be areas to explore with his team.<br /><br />My heart goes out to you. You are in my thoughts. All the best. <3Adenahttps://www.blogger.com/profile/08867344917851453119noreply@blogger.com