66 roses

We had another check-up at the CF Clinic yesterday. It seems that all doctors are in agreement that Malacia is what's causing this soun...

Drew takes over 300 pills a month. Thats of 1 medication - Creon . We will go through 150ml of Prevacid , 90 vials of Albuterol , 30 vials o...

I'm ready to catch a break. We went to the ENT today and she really feels that Drew has Tracheomalacia or something else in his airway m...

Well, we're home! This is how we got here... About 3 weeks ago, the whole family came down with a cold. Within a few days, everyone was ...

A 'Best' Hospital for Cystic Fibrosis Kids - US News and World Report "How it is," for someone with cystic fibrosis , is t...

So Drew's been in the hospital now for 4 whole days and doesn't sound much different than when we went in. They were expecting some ...