66 roses
Friday, September 30, 2011
We switched to Cayston
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A few weeks ago, I posted about Drew's medication plan for getting rid of his pseudomonas. We completed our two weeks of IV antibiotics ...
Thursday, September 29, 2011
Lovely day for a blog post
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I really love the volunteer work that I do at Children's. It has nothing to do with Cystic Fibrosis, so its a welcome break from somethi...
Monday, September 26, 2011
I'm high on today
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key: FDA = Food and Drug Administration, NIH = National Institute of Health A few weeks ago, I met with the Deputy District Director for Con...
Friday, September 23, 2011
Lung disease free are we!
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I went to a viewing on Wednesday night for the husband of a former co-worker of mine. Her husband passed away in his sleep at an age way to ...
Monday, September 19, 2011
Guess what I got!!!
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I have a meeting with the office of Speaker of the House John Boehner next Monday, two hours after I have a meeting with Congresswoman Jean ...
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Thursday, September 15, 2011
A few minutes a month
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This afternoon, we were playing out front when a woman with two small kids walked up. It was a little boy and a little girl, appearing to be...
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