66 roses

Monday, October 3, 2011

And we're off Cayston

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That lasted all of 3 days. We switched to Cayston because Drew's doctors felt that having him on inhaled antibiotic would help us to con...
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Friday, September 30, 2011

We switched to Cayston

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A few weeks ago, I posted about Drew's medication plan for getting rid of his pseudomonas. We completed our two weeks of IV antibiotics ...
Thursday, September 29, 2011

Lovely day for a blog post

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I really love the volunteer work that I do at Children's. It has nothing to do with Cystic Fibrosis, so its a welcome break from somethi...
Monday, September 26, 2011

I'm high on today

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key: FDA = Food and Drug Administration, NIH = National Institute of Health A few weeks ago, I met with the Deputy District Director for Con...
Friday, September 23, 2011

Lung disease free are we!

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I went to a viewing on Wednesday night for the husband of a former co-worker of mine. Her husband passed away in his sleep at an age way to ...
Monday, September 19, 2011

Guess what I got!!!

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I have a meeting with the office of Speaker of the House John Boehner next Monday, two hours after I have a meeting with Congresswoman Jean ...
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