66 roses
Thursday, April 25, 2013
What A Good Day Looks Like
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I have spent the past several months, if not the past year, working tirelessly to convince the CF Community at large that we need a Collabor...
Wednesday, April 24, 2013
Social Security and Disability Benefits
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A Message from the Cystic Fibrosis Foundation: The purpose of this message is to ask members of congress to sign on to a letter to the...
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Creating a Collaborative Chronic Care Network for Cystic Fibrosis - The Benefits from a Parents Perspective
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My name is Erin Moore and I have a 3yr old son who has Cystic Fibrosis. This morning, I wanted to share with you a story about why I think t...
Sunday, April 14, 2013
An Impassioned Plea
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Our 2013 Fundraising Letter Our son Drew is 3 years old and he has Cystic Fibrosis, a life shortening genetic disease for which there ...
Friday, April 5, 2013
The difference between improving a process and creating a new one
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When the CFF came to Cincinnati Children's at the end of January, I told a story about what some parts of our life are currently like l...
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The long and short versions of our week
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The short version: Coughing. Calling. Listening. Waiting. Testing. Worrying. Hearing. Deciding. Scheduling. Rearranging. Sleeping. Starving...
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