66 roses

If you're unfamiliar with my blog, I have a 3yo son who was diagnosed at birth with Cystic Fibrosis, a progressive and fatal genetic d...

Lots has been going on around here lately. In addition to it being a packed summer full of swim lessons and play dates and vacations, the CF...

A few months ago, I shared a story with the CF Foundation about my vision for the future of chronic care management. If you missed it, you c...

We were admitted to CHOP this morning. After 5 days of an increased junky cough and then two days of incessant coughing and dropping oxygen ...

We're hanging out in Pennsylvania for a little bit, visiting with family and just generally relaxing. Drew started on inhaled Colistin a...

This past Thursday and Friday, I spent time in Alexandria, VA participating in an amazing meeting called “Promoting and Sustaining the Colla...