66 roses

Friday, November 15, 2013

Finding a cure

›
"Walk with the dreamers, the believers, the courageous, the cheerful, the planners, the doers, the successful people with their heads i...
Sunday, November 3, 2013

Every day is a long day

›
We just found out this week that Drew's secondary insurance decided not to renew us for the upcoming year like they have every year for ...
1 comment:
Tuesday, October 22, 2013

Stream of Consciousness on the NACFC, Patient Engagement and Hope

›
Last week I attended the North American CF Conference in Salt Lake City, Utah. After I'd gone last year, I made it my mission to attend ...
Monday, October 21, 2013

Small Victory

›
Drew has been culturing Achromobacter, an antibiotic resistant bacteria, in his lungs since January. We have had several hospital stays, a c...
1 comment:
Wednesday, October 2, 2013

Patients Included: But Are We Respected?

›
"Any man or institution that tries to rob me of my dignity will lose because I will not part with it at any price or under any pressu...
2 comments:
Tuesday, September 17, 2013

A Collaborative Chronic Care Network (C3N) for Cystic Fibrosis

›
What is a Collaborative Chronic Care Network? I asked the same question about two years ago when I first heard the term mentioned. In short,...
‹
›
Home
View web version
Powered by Blogger.