66 roses

A few months ago, I had shared on here that I had a little incident that put me in the hospital for a few days and resulted in the discovery...

We spent the past 3 days in Washington, DC advocating on Capitol Hill for CF awareness and funding, or hope as I sometime call it, and joini...

When the world says, "Give up," Hope whispers, "Try it one more time." ~Author Unknown I have a hard time l...

Last week I traveled to Washington, DC for two meetings. One was on the important role that patients & caregivers plan in understanding ...

Join us today in wishing Drew and his twin sister Lily a very happy 4th birthday! Your support will help to add more tomorrows to our sweet ...

I had a really incredible week last week, first in DC and then in NYC. I was in DC for the second meeting of the Patient Engagement Committe...