66 roses

Tuesday, October 28, 2014

At least we have a plan!

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I think that our baseline is changing. Every time Drew gets sick, with some combination of antibiotics and therapies we seem to be able to g...
1 comment:
Monday, October 20, 2014

A day off

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I have today off. Well, mostly off. I have set a regular work schedule for myself in an attempt to accomplish all that I want to while maint...
1 comment:

A Fun Announcement - Data4Health

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I have been named to the Robert Wood Johnson Foundation’s Data for Health advisory committee. The Data for Health initiative will explore ho...

NACFC

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It's been more than a week since I returned from the North American CF Conference (NACFC) and I finally have the chance to sit down and ...
Monday, October 6, 2014

Don't. Tell. Anyone.

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I have a great idea. Let's have a meeting. Let's invite all of the brilliant minds in CF - the scientists, the care providers, the p...
2 comments:
Wednesday, October 1, 2014

Non-Compliance Anonymous

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My name is Erin, and it's been 4 and a half months since our last clinic appointment. Why haven't we been to clinic? It depends who ...
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