66 roses
Tuesday, March 31, 2015
Dear everyone,
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It has been a rough week. At this time last week we started to have the conversation with Drew's doctor about whether IV antibiotics wou...
2 comments:
Tuesday, March 24, 2015
What we need most
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I'm sure many of you heard that Drew had a rough day today. A routine clinic visit didn't go as planned and he ended up in the hospi...
1 comment:
Saturday, March 14, 2015
He's FIVE (and he's still alive!)
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I have so many thoughts to share on this special birthday, but for now I will ask for your support. I want more birthdays for Drew, and the ...
Saturday, February 28, 2015
Rare Disease Day 2015
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A few years ago, I wrote this post about what a typical day looks like for us. What I wasn't able to articulate at that time, whether ...
Thursday, February 5, 2015
That time I went to the White House (part 2)
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On Friday, January 30, 2015, I arrived at the White House (yes, the one the President lives in) at 9:30am. I found some of our CF Foundation...
2 comments:
Saturday, January 31, 2015
That time I got invited to the White House (part 1)
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"Our deepest fear is not that we are inadequate. Our deepest fear is that we are powerful beyond measure. It is our light, not our dar...
2 comments:
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