66 roses

Wednesday, June 24, 2015

CF Matters - A Podcast about improving health and care in the CF community.

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Quickie post to share that our podcast, CF Matters , is up and running on iTunes! Check it out, and leave a review to let us know what you t...
3 comments:

In sickness and in health, for as long as we both shall live

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I mentioned in a prior post about the value that I find in tracking my sons data. I wanted to share a presentation that I recently gave at G...
1 comment:

Summer ramblings

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We are deep into the weeds of summer - hot days, exhausted kids, dirty floors - and we are embracing it. The girls are at camp this week whi...
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Wednesday, June 3, 2015

The "What-if" Monster, revisited

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Several months ago I shared a post where I talked about a children's book that we have at our house called "The Whatif Monster...
2 comments:
Wednesday, May 20, 2015

Stay tuned for whats to come!

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I use to love writing on this blog. I still do love doing it but just can't seem to find the time. I want to commit to doing it more oft...
3 comments:
Thursday, April 16, 2015

#CFEveryday

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It has been a whirlwind month for us! As I mentioned in my last post , Drew had been struggling with an increased cough for several weeks pr...
4 comments:
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