66 roses

Take a quick moment and watch this video - 3mins, worth your time -  https://www.youtube.com/watch?v=V74AxCqOTvg I am the lone nut, doing ...

Last Friday, Drew had a bronchoscopy so that we could see what his lungs actually look like in real life (vs on a CT scan or MRI) and so tha...

I remember the day a nurse walked into my sons room in the NICU in a gown and gloves, before we ever knew what cystic fibrosis was, before o...

Fight Song from Erin Moore on Vimeo .

This post originally appeared on the CFF blog It's 10 a.m. on a Sunday and we have received notification of new test results. My son...

I've recently read some seriously amazing articles and blog posts from friends that I want to share with folks who read my blog. These p...