Saturday, March 5, 2011

We need your help

I just can't help but tear up every time I watch the Great Strides videos being made by so many families affected by CF right now. I wanted to share a few. The first is a blogger friend. We've never met but we share a common bond - her daughter has CF. The next is a friend of a friend who also has a daughter with CF. These kids make you smile, but if you saw what was happening on the inside, if you saw what their daily routine looked like to keep them looking the way that they do on the outside, maybe you could start to understand. Live a day in my shoes for a moment. The median age of survival is 37. That's the median age. The average. Unfortunately that means that there are way to many young lives being lost to this disease that's dragging that average down. Is Drew going to be one of them? I met a woman today who is friends with a 18year old girl waiting for a double lung transplant instead of heading off to college with her friends. It breaks my heart.
A huge study just came out with fantastic results on a new drug that targets the basic defect of Cystic Fibrosis. Will it get through FDA approval in time? How much longer will these children have to suffer? Please help us. Please donate. To Drew, to Ayla, to Lilly, to the thousands of other kids living with CF. They need your help so badly.

And incase you haven't seen ours yet, here it is:

1 comment:

  1. great idea to post a few videos!! Thanks so much for including mine!! I just love all of these videos of our kids!! Such amazing little fighters!