"It’s not quite love and it’s not quite community; it’s just this feeling that there are people, an abundance of people, who are in this together."
"We don't have a word for the opposite of loneliness, but if we did that's how i'd say I feel right now. Here, with all of you. In love, impressed, humbled, scared."
Does this not feel like Smart Patients? It's not just for CF patients and caregivers. Patients and caregivers from any disease group, can join (if you're not CF, use this link). These are the groups that are going to change the face of chronic illness care. Patients, often known as the most knowledgeable and underutilized resource in the healthcare system, are in this this together, and we're going to change the world.