The one thing I have going for me is Drew's health. He still has the gunky nose I spoke of last week, but it has yet to hit his chest. Its been a real blessing not having to find time to talk to doctors and nurses and run into the office so they can check him out. I've spent more time at Children's Hospital in the past 3 months without him than have I have with him, and that's awesome. He has his next visit on the 19th and I hope that they're as happy with his health as I am. And of course I hope that we get a good culture report. It will suck if he's growing bacteria because he's been sounding so healthy. There is almost no cough anymore and his noisy breathing is essentially gone. The worst part about having a culture taken on the 19th is that we will get any bad results on the 23rd. I don't want to have to scramble the day before Christmas Eve to get him on whatever medication he might need. I don't want to have to have a schedule on Christmas weekend to administer antibiotics. I just want to have a stress-free, healthy holiday. Is that to much to ask?
I have to voice a complaint about one thing while I'm going. In the news this week, the FDA approved an over the counter drug that claims to cure a hangover. Perhaps a few years ago I would have thought that this was a great thing. However, when I see things like this in the news and think about how the drug that could save Drew's life is also at the FDA and just waiting in line for approval, it makes me furious that we are waiting behind drugs like these. I know that everyone has their cause and their issue that they're dealing with, but in my mind the system is seriously flawed when drugs that "cure a hangover" are placed in the same waiting line with drugs that "cure a genetic disease". I'm sorry, but people who take things to grow their eyelashes thicker or get Botox injections to "cure" a wrinkle have no clue what a real problem is. To spend hours every day doing breathing treatments to "hopefully" keep oneself from getting sick with irreversible lung damage or to take dozens of medications because your body doesn't produce the enzymes it needs to break down food, those are real problems. I wish the biggest problem we had was dealing with a self-induced hangover. So that's my beef. How can these things even be on the same playing field?! We need a new system because our system is currently broken. And i'll shout it from the rooftops, letting any and all decision makers know how I feel about it. One person can make a difference, and I'll prove it.
Finally, if you're in the market for Christmas movies this holiday season, consider buying them from any CVS, where $5 from every DVD sale will go to the Cystic Fibrosis Foundation.