A Message from the Cystic Fibrosis Foundation:
The purpose of this message is to ask members of congress to sign on to a letter to the Social Security Administration being circulated by Congressman Ed Markey (D-MA) and Congressman Tom Marino (R-PA) that expresses concern with the proposed rule, "Revised Medical Criteria for Evaluating Respiratory System Disorders".
The "Revised Medical Criteria for Evaluating Respiratory System Disorders" proposal changes the medical criteria that the Social Security Administration uses to determine whether someone with cystic fibrosis is eligible for disability benefits, and physicians who specialize in CF say that these revisions do not accurately measure whether a person with cystic fibrosis is disabled. If left unchanged, the proposed rule could unfairly bar people with CF who cannot work from accessing these critical resources.
The most troubling provision of the proposed rule states that in the event of a serious complication, a CF patient would have to be hospitalized in order to show that they are becoming progressively sicker to the point of disability. However, doctors now have the ability to treat some very serious complications on an outpatient basis, and many doctors prefer this alternative due to the risk of hospital-acquired infection and the cost of hospital care. Requiring hospitalization goes against accepted medical practice and could impact CF patients' eligibility for benefits.
Once again, we are encouraging all members of congress to sign Representatives Markey and Marino's letter to the Social Security Administration (SSA) which expresses concern with the proposed "Revised Medical Criteria for Evaluating Respiratory System Disorders" rule and urges SSA to revise this proposal. For more information or to sign on, please contact Sara Schaumburg in Congressman Markey’s office at firstname.lastname@example.org Drew Kent in Congressman Marino’s office at email@example.com.
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