Thursday, July 24, 2014

You Kicked Her Out: An Open Letter to the American Association of University Women by Kristin McGuinness

An amazing CF Mama wrote this essay in response to this story in the news about a girl with cystic fibrosis and a discrimination complaint against a national women’s group

Dear American Association of University Women:
You kicked her out.
You kicked her out?
Devyn Solo, she is bright...determined...upbeat. I don't even know her, but I know that much about her. She is brave and empathetic too. I know these things because she is just like my daughter.
My daughter also has cystic fibrosis.
You would kick her out too, I suppose.
These bright, vivacious, ready to go for what they want. You would read their applications and think “YES!” You would interview them and say afterwards “Wow!” You would peruse their recommendations and smile wide and and nod. These are the girls you WANT in your STEM program.
Responsible girls.
Smart girls.
Girls with sparkle and spunk.
Girls with dreams.
And you would send them letters saying “congratulations, you have been accepted...”
And then you would kick them out.
Because their cells misbehave.
Because they were born that way.
With cystic fibrosis.
Because they have to take pills when they eat. Which they have been doing on their own since they were 2 or 3 or 4 years old. Even at school. On their own. These pills pose no threat to other students, they are enzymes that everyone (without CF) manufactures in their bodies.
That is too much for you. So you kicked her out.
Because these girls would have to plug in a couple of machines to do breathing treatments and chest physiotherapy twice a day, you would kick them out. These and math required to create and run effectively...these machines scare you? They must. Because you kicked her out.
Cystic fibrosis is a genetic illness; nobody else in your program was at risk. CF is a genetic illness, she did not ask for it. She asked for an opportunity. To learn and move towards her dream. And you gave it to her. But then you took it back.
You kicked her out.
These girls, Devyn and my daughter, they have so much more to deal with every day than most kids. They work really hard to stay healthy, to look healthy, so they can do the things they want to do. They face needles and x-rays and IVs and medication after medication...just to keep even with the other kids. And they try to stay positive about themselves, their talents and skills and their ability to make it through to their goals—college, a career, a family.
You were right there, ready to give Devyn a positive experience, to be a stepping stone towards her dream. And then you kicked her out.
Because you were scared. And uneducated. And untrusting of her.
You kicked her out.
You kicked her gut. You knocked a girl down. You made her question if she can do it...because she's sick. You crippled her sense of who she is; made her wonder what all the extra work is worth if she won't be allowed to do things that other girls can do even if she is healthy. You did not empower her. Not in science. Or technology. Or engineering or math. You kicked her out.
Shame on you.
And to Devyn, keep on shining. Keep on taking care of yourself and studying and being a positive young lady. You will reach your goal. You will make them sorry they missed out on the opportunity to have a girl who LIVES science and technology in their camp. Stay active and take your medication. Because with or without the AAUW, you, Devyn, kick butt!

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