Saturday, August 23, 2014

A Book of Hope

About a year ago, a learned about a project that another parent advocate in a different disease community had been working on. He had asked the question of some of his peers, "If you could, what advice would you give to someone who was newly diagnosed?" The response he got was overwhelming, and he created a Book of Hope for the IBD Community.
Fast forward to this July when I was told that had sufficient resources to create and distribute this same booklet completely free of charge for another disease community, and asked if I thought that it was something that CF patients and families would embrace. It was a no brainer. I asked this question to other CF patients and families, "If you could, what advice would you give to someone who was newly diagnosed?" The response that we got was again overwhelming, and we created a Book of Hope for the CF Community. It's in the process of being printed, and will be distributed absolutely free of charge to anyone wanting a copy starting in early September. I hope you like it!
 (*Don't worry, this version has been every so slightly edited so that the print version will be void of grammatical errors.)


















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