I've told a lot of people who don't see him often and ask how hes doing that if you were to just look at him you wouldn't know a thing was wrong. Now, if you hear him, you're pretty sure he's about to croak. He's doing great. I asked the CF nurse the other day on the phone if I was being naive to think that hes actually really doing pretty good, and she said not at all. She said that most of whats been going on is all complicated by the CF but its not typical CF presentation. Hes gaining great weight and we're monitoring his lung health so closely that if he were to catch anything bad we would know right away. The name of the game with CF is prevention prevention prevention. And we're on it.
Life has been pretty boring otherwise. We're finally into our groove with the vest. We actually got a wrap that looks like a giant blood pressure cuff instead of the vest because the vest was a little to big (and I admitted that we probably jumped the gun a little trying to get into a vest so young). But its working great and we're happy with the saved time. Hopefully we have an uneventful next few weeks in terms of the CF. We're ready for a doctor-free Christmas and New Year!