I just have to say that hearing from other CF families is so inspiring for me. Some of these Great Strides teams raise hundreds and thousands of dollars every year for CF research. Others talked about the challenges of managing such huge campaigns while being a CF caregiver, because we all know that the passion of a CF parent to fund and find a cure is unparalleled. I could relate. I loved hearing all of their fundraising ideas as they ranged so far and wide. I wish I could do it all, I really really do.
You may recall this post about the Celebrity Waiters event and how put off I was by the lack of genuine care and concern about CF. People were there to rub elbows with other rich people and lost sight of the reason we were there in the first place. On the call today, one man made a good point. CF will never mean as much to many people as it does to you or I. Walking in Great Strides or making a donation toward Great Strides may not be for everyone, and I get that. The key is to find what it is that people will do, will enjoy and will contribute to either directly or indirectly. Every year, they have a St. Patricks Day party, because who doesn't love to drink?! They charge $75pp, they have food and drinks donated, the have bands and friends and fun, and they raise a BOATLOAD of money for CF. This year, they have over 500 people attending! That's over $37,000!!! ($37,500 to be exact!) Others are big into getting corporate donations, recruiting walkers to help raise $ (kind of like the pyramid marketing schemes, only in a good way) or doing letter mailing campaigns. People who have school age children do a lot of work with schools to raise money. One man has been working on getting corporate sponsorships from places like Papa John's, where a portion of all sales nationwide get donated to CF. Its incredible what people are doing! I need to spend more time talking to the people doing this so that I can broaden my reach.
I'll keep doing whatever I need to, whatever I can, to raise money for CF. You might not have time this year to walk, or the time or desire to host a fundraiser or any other type of event to raise awareness and support for CF. I don't have the time either. But I have the desire to have Drew around forever. I know that to ensure that CF doesn't win in our family, I need to make the time.
I got an email today with something in it that I wanted to share - "