UPDATE!!! I got a call from the CFF office yesterday, saying that they had been invited to attend the symposium and were asked to bring a few parents & caregivers with them to listen in for the day...and they wanted to know if I was interested in attending!! So I've officially been invited, and I can't wait to go!
Okay, well technically not really. But I can go if I want! To what you ask? To the
Please join the Division of Pulmonary Medicine for a day of scientific discovery and celebration. The symposium will feature scientific breakthroughs in the field of Cystic Fibrosis led by researchers throughout the country and at Cincinnati Children’s. We will also celebrate the establishment of the Thomas Boat Chair in Pulmonary Medicine and the appointment of Dr. John Clancy to the chair.
Now let me explain what that all means. These doctors - Thomas Boat and John Clancy - are some big time Cystic Fibrosis doctors and researchers. Dr. Boat, though I've never met him, has a reputation as a pioneer in the care for and treatment of cystic fibrosis patients. Dr. Clancy has been called the lead Cystic Fibrosis researcher in the country. AND THEY ARE BOTH IN CINCINNATI! So I get this email from my friend and I think about how awesome it would be to meet them and hear them speak. And I open the email attachment and I see that its more than just those two amazing doctors that are going to be there, but rather the best of the best from around the country!! All of these doctors and researchers, all in one place, and I have access?! Get out of town! Here's a peek at the agenda:
10:00 am Welcome and IntroductionRaouf S. Amin, MDDirector, Division of Pulmonary Medicine
10:15 am Cystic Fibrosis Science at Cincinnati Children’sArnold Strauss, MDPhysician-in-ChiefDirector, Cincinnati Children’s Research Foundation10:25 am Cystic Fibrosis ProgressThomas Boat, MDExecutive Associate Dean, University of Cincinnati College of MedicineCEO, University of Cincinnati Physicians10:55 am The Network Development of Cystic Fibrosis Basic andClinic Science: The Role of the FoundationRobert J. Beall, PhDPresident and CEO, Cystic Fibrosis Foundation11:35 am Breakthrough in Animal Models of Cystic Fibrosis DiseaseMichael Welsh, MDDirector, University of Iowa Cystic Fibrosis Research Center1:20 pm New Paradigms of Inflammation in Cystic FibrosisChristopher Karp, MD, PhDDirector, Cincinnati Children’s Cystic Fibrosis Foundation2:00 pm Bringing Quality Improvement to Cystic Fibrosis ClinicalCare and Applying to Clinical ResearchGerald T. O’Connor, PhD, ScDProfessor, Medicine and Health Policy and Clinical Practice atDartmouth University2:50 pm The Realities of Cystic Fibrosis Disease, Current and Future TargetsMichael Konstan, MDProfessor and Chairman of Pediatrics, Case Western Reserve UniversitySchool of Medicine, Rainbow Babies and Children’s Hospital3:30 pm Cystic Fibrosis Modulators – Are They Enough?John Paul Clancy, MDDirector, Clinical and Translational Research, Cincinnati Children’s
I emailed one of our doctors, Lisa Burns. She's a fellow and she is awesome. After I saw the agenda I thought to myself, "I wonder if this is for parents" as I hadn't received an invite, I had been forwarded an invite...from a clinician at Children's. Lisa emailed me back shortly thereafter and said that she would check and see. Dr. Amin (our August 2010 hero of the month for the discovery of the aorta compressing the trachea which lead to Drew's heart surgery that helped him so very much) responded