The funky nose that we've been dealing with for about 3 months now will finally be addressed this Friday at the ENT. From the way the CF docs made it sound, a sinus surgery is probably in our near future, but hopefully that will fix our problem and we can get on some medicines to keep things at bay. I've been a little overprotective lately about germs, as Drew is so congested without a cold, and I think that catching something would send him into a tailspin. This year is SO different from last year, when at least one of the kids was sick at every single moment from about late October through March. It was miserable. We are extra careful about hand washing and sanitizing and ask everyone we hang out with if they are healthy before we get together. No outside germs are coming into this house this season. Well, at least not if I have anything to do with it!
I met an amazing woman this weekend. She is a 50 year old woman living with CF. While unfortunate circumstances brought her to town, it was so great to finally meet her in person and have her confirm that I am not a loon about my hand washing/sanitizing and overprotective ways. Her mom took such good care of her when she was growing up, way before they even knew what caused CF, and she is in good health today. She still spends a lot of time doing her treatments and being careful and protective of her health. If its worked for her thus far, I'm all about hopping on that train!
I also got a comment on here from a mom who has a son experiencing symptoms similar to those that a lot of CF folks have, yet her son tested negative for CF. Unfortunately I don't have her email address or any way to get back in touch with her, so if you happen to be reading this, email me! I'd love to chat!
I'll post an update after our ENT appointment. I'm hoping there is an easy solution. I would love to not need another surgery, but I guess we will do what we have to do!