Saturday, January 14, 2012
Significant Sinus Disease
So the doctor called back, and while they didn't specifically see any polyps, she did say that he has significant sinus disease. I got the impression that its not really as bad as it sounds? It was described to me as a chronic condition where a persons sinuses are like constantly inflamed and blocked with mucus. Its fairly common with CF apparently. There are acute episodes that one can have if they have sinus disease, like they are assuming Drew is having now. I understand that, like the mucus in the lungs of a CF person, the sinus' also have trouble draining and can culture bacteria. Drew will be on a nasal steroid to try to keep some of the inflammation down, once we get past this acute episode. We have been referred to an ear, nose & throat surgeon (ENT) and will potentially be having sinus surgery to unclog and widen his sinuses. Once they are "clear" that's when the nasal steroid will go into use, trying to prevent further acute episodes. Some kids/people with sinus disease just learn to live with the stuffy/runny sinus cycle, while others get significant relief from repeated sinus surgeries over time. Sometimes these acute episodes will require an antibiotic, but just like his lung infections, the runny/stuffy nose will not be contagious. That's another tough one, because who wants their kids around someone with a funky nose? Oh well, we survived the cough assumptions and we'll survive the nose one too. We have an appointment with the ENT next Friday so hopefully we will have a better solution after that. And hopefully, when Drew gets to try the new FDA drug in April, it will fix his mucus problem and in turn also correct some of these sinus issues too!