Thursday, October 28, 2010

Bacon & Eggs

We just got back (okay, 2 days ago) from a fabulous trip back to Pennsylvania. The drive could not have gone better. It took us about 10 hours each way, and on both ends we only had to stop twice! There was very little crying & complaining, and lots of sleeping! The visit, on the other hand... The kids were just a little out of their element. Nap times were a little off and there was usually someone awake in the middle of the night for one reason or another, but otherwise we really did have a great trip.

A lot of my family got to meet the twins for the first time. Its always interesting to see people who haven't seen/met Drew yet have to say about him. There are always a lot of questions about him and his care and we are more than happy to answer them. From the start, we felt that knowledge was power and thats why this blog was created in the first place. No one can ever believe how big he is. I guess they expect this frail little boy, but he's far from that! We heard "If I didn't know his story, I would have no clue anything was even wrong with him!" more than once. Thats the blessing and the curse I guess. I love that he looks so great, just like the other kids. Chubby little boy, full of smiles and laughter. Everyone will treat him just like the other kids. On the flip side, I don't know that anyone will ever really understand what we go through every day to keep him looking that way.

Hes doing great right now. He sounds a little junky again but I guess thats just the deal when he gets a cold, at least until he outgrows the malacia. He's pretty much done with the vomiting. It still happens from time to time, and it seems to have something to do with him being really full. The GI doc wants us to continue using the Elecare formula for a couple more weeks and if he still seems to have slow gastric emptying they will put him on some medicine to help with that until his stomach heals completely from whatever he had (they said it can take up to 8 weeks!). We're hoping to get him fitted for a vest next time we're at the doctor. This is another airway clearance device that would take the place of our chest percussion. It still happens 2-3 times a day but it would make our lives a little easier (at least I think!). I'll write more about that when the time comes.

We have Ella's Harvest Festival at school on Friday. She's going to be Tinkerbell and the twins are going to be bacon & eggs. Hopefully we will have a relaxing weekend. I'm so tired from this past couple of weeks that I could use a weekend full of nothingness.

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