Monday, September 17, 2012

Accepting and Living Your Life with CF

We had our Oktoberfest: Drinking for Drew party this past Saturday and in addition to a TON of fun, we raised $1,050 for the Cystic Fibrosis Foundation! We had between 60-80 people and the party went from 5:30pm until the wee hours of the morning (ok, really just like 1am but that's like the middle of the night in my world). We are go grateful to have such wonderful friends who support us as we fight for a cure. We've already started planning for next year so keep your drinking pants handy!!

Talking to people about CF has always been a weird thing for me. I'm completely open to sharing however much people want to know, but also don't want to bombard people with more info than they may want. When I'm fundraising, I share the hard parts of CF life. When I'm just chatting with family and friends, I want to share with them how well Drew is doing and how much hope we have. How do you talk to people about CF?  I found this on CF Living and wanted to share.  Check out to watch CF patients, caregivers and experts share their personal stories on accepting CF and how they describe CF to others. Being open about CF may help strengthen your support systems and help you deal with CF’s day-to-day issues. The video features:       
·         LaCrecia Britton, CF Coordinator, RN and CPNP
·         America’s Got Talent finalists, Ali and Christina Christensen, and their parents
·         Ronnie Sharpe, CF patient, author of and co-founder of

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